PSA still zero – action below the belt not much more

My 9 month post-op PSA test recorded zero. Obviously great news.

But erections remain a thing of the past, despite, drugs, pumps and needles.

Have been trying acupuncture and acupressure but with no obvious impact. More time and patience required.

There is just so little research on how to get the nerves working again and the doctors are just guessing. I wish I had more positive info to report.

All that aside, life is great. I feel healthy and I’ve just returned first from time with all my family in Perth/Broome and more recently from a leisurely holiday to Pulau Kai in the Malukus. Can’t complain too much, I have friends going through chemo and radiation therapy. For me, life is good.

6 months – the good and the bad

The good is that I’m feeling great and recent checks have my PSA at zero. Leaking is minimal – except when I cough or sneeze.

The bad is that erections have not returned – though I know it is still early days. Injections, while they swell the penis, do not make it hard and the pain afterwards is considerable. I’m going to stop these for the moment.

Next thing to try is acupuncture. Not sure the traditional Chinese style will work – more interested in dry needling in the right areas. It’s all experimentation. And, to be honest, none of the doctors really seem to have a grasp as to what works. So I will keep trying new ideas and treatments.

Tantra

Spent last week on a Tantra retreat for couples. More about relationships and mindfulness, rather than sex, but included a few “tips and tricks.” The retreat was facilitated by a wonderful lady from Australia, Jacqueline Hellyer.

Why Tantra? Well with ED being an issue, why not explore other ways of being intimate.  Bali has a few Tantra options, some not appealing to my partner, but this one was informative, practical and “no sleaze.” I would recommend it for all couples.

Had my 5 month PSA test today – results tomorrow. Fingers crossed.

Still doing Pilates. But I’ve been a bit slack with my pelvic floor exercises – thought I had the leaking under control – mostly is, but I need to keep up the exercises.

 

Penile injections

2 words that bring a tear to every man !

Well I’ve done it – it works – erection lasted over 2 hours – intercourse possible. Not painful but very strange feeling after. Really not something I want to do every day. The doc reckons I should inject once a week, just to keep the cells and membranes flexible. Hmmm.

I guess it is all progress.

At least my partner is happy 🙂

80 day checkup

Back to Perth to visit the urologist and men’s health doctor.

Mostly tracking OK.

Curiously, the pathology results of my prostate only give me a 78% chance of not having an increased PSA level within 3 years.  That’s 22% chance my PSA will go up again. And the surgeon reckons the cancer had not escaped from the prostate and the lymph glands and the area marginal to the prostate showed no sign of cancer. So where does this 22% chance come from – a microscopic cell of cancer that did escape and was not detected ?! Anyway, not much I can do about it now except regularly check my PSA and live healthily.  More tomatoes and green tea. What other dietary delights have people found to have worked – at least for them?

The “Dick Doctor” gave me something to inject into my penis.  Haven’t tried it yet. He reckons it needs to be done at least once a week to keep all the cells and membranes in working order. More on this after I try it.